I am co-founder and chair of The Exon 20 Group (here), operating under the umbrella of the 501(c)(3) non-profit ICAN – The International Cancer Advocacy Network (here).  Our multistakeholder group is focused on two specific and very rare cancer mutations called EGFR exon 20 insertion and HER2 exon 20 insertion that are present in lung cancer and 24 other cancer types. My brother (non-smoker) passed away from this cancer in 2019. 

We are seeking to raise our presence around the world to: 1)  identify more lung cancer patients with this mutation (very hard to do right now), 2)  guide patients to best treatment options across the country (and really, around the world), and 3) work with the research community, e.g., Dana Farber, The Broad Institute, MD Anderson, etc., to fill the drug pipeline to provide more and better options in (2) and thus help those in (1). 

We have a range of ideas to increase our presence and impact that we’d like to execute on, including interviews with patients, oncologists and other specialists,  researchers, and pharmaceutical companies, and also coordination/execution of a Zoom summit conference in early December (2021). 

Skill set required:  video production, , GoToMeeting/webex coordination, communication excellence, and especially a strong interest and a creative energy to make an impact in this cancer community.

Interested students should contact Bob Hanlon at robertthanlon@gmail.com